Blog Archive

Tuesday, August 30, 2016

Day August 30, 2016 Chemo Monday and Steroid Buzz

Happy Dance chemo report! Monday was #3 of 12 treatments. Again, it was easy and I've had no side effects...other than the total buzz feeling from the steroids that are in the cocktail. Literally I was up til 2 a.m.t this morning, and still wasn't tired. If I got 3 hours of sleep last night, that would be a surprise. I am still going strong even today, so whenever these steroids finally wear off, I might sleep for a couple days to catch up on my needed rest.

I am very thankful for Graham Binder who graciously gave me his entire day yesterday. Not only did he lovingly serve me by transporting me to chemo, but hung out with me all day and did a bunch of chores around the house. His love for the Lord oozes out of him and I am blessed to be a recipient of such a joyful young man's hospitality.

Thankfully since I'm feeling so great, I can continue living life somewhat normally. I  had decent white blood cell count yesterday too, so that is a praise! Still, I am being careful around crowds.

With next weekend being Labor Day, I won't get my next chemo treatment until Tuesday. 

I'm hoping my insurance company gets my billing straightened out. Supposedly they are saying that one of my mammograms, the 3D one, was 'experimental' and that some of my chemo treatments are 'not covered' in my plan. If that's the case, it looks like I could be looking at being responsible for over $16,000 of totally unexpected expenses so far. Please pray that this is not the case. I'm not stressing yet, because I trust it's just an error, but I never trust insurance companies much.






Saturday, August 27, 2016

Day August 27, 2016 Forgetting To Blog Is A Good Thing

As the good days roll on, I realize that blogging isn't part of my day to day thoughts anymore. That's a good thing. When I don't struggle like before, when biopsies, needles, nausea, and chemo brain aren't part of my every waking thought, I can just live. Since Monday's chemo, I have continued feeling great!

This week I even started walking a mile every morning and am loving it!  I walk and listen to my audiobook and walk. Still listening to The Ragamuffin Gospel. A very good read. No, an EXCELLENT read! I am thankful for the author and his similar background as I feel I relate to his word choices, his examples,  his past experiences and vulnerable present growing experiences on a level that strongly resonates with me. It's a bit 'heady' but I love the challenge. It actually makes me think of a few folks that I will share this with as they may love it as much as me.

As I said earlier, I did have some funky itching/tingling in my face and sinuses but it's not a complaint, just an observation.  Hot flashes are a regular part of my days again, too, but that isn't necessarily from the chemo, just being 49 and kinda menopausal. Oh, joy. It just has me putting my turbans off and on constantly. Most of the time I just go au naturale. My bald head is even getting a nice tan. (Crazy side note...I wasn't sure how to spell au naturale, so I Googled it and guess what I found? An amazing new company from Green Bay, WI that makes beautiful non-toxic make up! Oh, Yes! Think Christmas gift card, mom! :)

This upcoming Monday I do have my ride arrangement to my chemo appointment all set up (thank you, Graham Binder!), and I am hoping to continue feeling pretty great all next week. So if anyone wants to come for a visit, I am open to company! I  don't 'need' folks to Tricia-sit anymore during the week until surgery, but I do need a ride to my chemo appointments. If anyone has time on Mondays and can pick me up, hang out for a few hours in West Chester, then drop me off at home, I still will need a ride for several more weeks. I can't say it's 'fun' but I do love the gift of the company I have had for the past 6 chemo treatments. God has provided so bountifully!




Wednesday, August 24, 2016

Day August 24, 2016 Taking Advantage of Steroids and Sharing Spiritual Lessons Learned

All is good here still! Had chemo on Monday and 2 days later I still feel great! I know there are steroids in the cocktail I get with my chemo, and while I have that energy, I will use it!

Yesterday I made cassava pitas (not my favorite), mowed the grass, cleaned my deck, Windexed my glass tables outside in the gazebo, did a load of laundry, cleaned the kitchen, talked to a couple dear friends and had company for dinner! Now I know most people do those things without thinking about it, but when it was all I could do to walk up and down the stairs for the first 4 doses of chemo and only have energy to get a little sustenance in me, these days are worth celebrating! Joy in the little things.

Unfortunately, I keep waking up at 4 a.m. and amble downstairs and plop into the Wilderness Room couch and read or scour Facebook until I  fall asleep.   But since I am not working, it does not really matter because I can just nap whenever I want to! It just means less cuddle time with my amazing hubby.

So while I am not complaining, I will say that I do feel a bit of the chemo today, but it's more like a tingling or itching in my face and sinuses.

I am aware that my white blood cell count will be taking a hit now that I'm not on Neulasta, so I want to continue being careful. Unfortunately, I sliced off 1/3 of my fingernail the other evening while chopping basil for dinner. Thankfully, it has not hurt (miracle) but I do know that my body is in repair mode because of that and I really don't have extra white blood cells for that kind of stuff. I will ask my oncologist about getting some Neulasta at my next dose. (I feel like I said that in the last blog...oh well). But if I don't get more Neulasta, I will likely have less and less of a wbc count each week.

Spiritually, I'm in a great space still. I continue to read or listen to books on hoopla, which is a free library website. I continue to be in prayer constantly for so many folks and I continue to be reminded of my gift of a more realistic viewpoint on my situation. This Life is short. Make the most of it. Live for Christ...it's all there really is living for anyway in light of our real life...eternity. Don't waste time in useless activities. Live on purpose. Understand your purpose. Don't be too attached to your circumstances as if you are in control, but allow God to be your reason, your purpose, your all in all.

When I have the opportunity to share some of the most valuable lessons I am learning through all this it usually focuses on these  points:  Trust God's promises. They are true. He is closer than we may realize and He has a plan for each and every person. His love for us is crazy awesome! Don't view difficulties and 'tragedies' as something not usable or worth our time. It's in the valleys that we can choose to grow and inspire and can find our real selves. For me, it's in my valley that I realized that God can use anything, even cancer, to allow me to feel more free to share His goodness, His love, His desire to be in our lives, His plan for us, and how faith in Him is something worth living for. This Life is so short. Sometimes I can't wait to be home. Until then, I won't back off what I've learned. He is real, true, and closer than I ever realized. I just needed to slow down and look.

Also, I have learned not to be so caught up in my flesh. I don't mean the Christian-eze 'flesh', but the skin, the looks, the attachment to my body. In fact, I realized something recently...I don't have cancer...this body that I am residing in does. I am not my flesh. Think of it. When someone dies, we look at their body and say, "They are gone. That's not them anymore. It really never was. Our bodies are simply a vessel our spirit resided in while here. We will have another body that will be perfect and that will be our permanent place where our spirit will reside, but this diseased, bald, wrinkling, aging body really is not who I am. So I have let go of my fear of losing it. God has bigger and better plans for me in His own time, and until then, I will take care of this vessel, I will love this vessel, and I will hopefully grow old in this vessel, but I need not be too attached to this vessel. I trust my future to my Father much more now than ever. That's a huge exhale!

Monday, August 22, 2016

Day... I Lost Track of Days, So Chemo Day Taxol 2 of 12...or Week 10 of 20 HALF WAY THERE!

It's been a while since I sat down to type on my blogsite. No real reason why I haven't, other than the fact that I've felt really decent and have not had much physical stuff to comment on.  Spiritually, things are good. No major revelations or a-haaaa moments, so I've just lived life normally, hopefully like most of you.

I'm still bald and shave my head every other day to keep it smooth and silky. Thanks to Ann Post from www.annmadesoap.com, who graciously gave me some soap and amazing balm I use on my head, I get to use my Neem Balm every time I shave and love the way it feels. Today, while getting my chemo, there were a couple ladies next to me who talked about their hair loss and how they never really shaved it down to the scalp with a razor so the wiry straggler hairs that did not fall out just continued to grow and when they went bald, it definitely looked like they had chemo hair loss cuz there were funky random hairs all over that stuck out. I'm thankful I decided to just use my really nice razor and shave it silky every day or so. I can go bald and not feel conscientious about it at all. And thankfully, John does not mind at all how I wear it. He truly thinks I look great bald, in a turban, or with the wig. That makes things easier.

I have  been told that this new drug, Taxol, will still continue hair loss, so it's possible I could lose my eyelashes and eyebrows totally, but that hasn't happened yet. Today I was also informed that I can expect my nails to turn blackish and possibly fall out from it. Eeew. I hope not, but it's not the end of the world.   And I was told to expect the neuropathy at some point, as well.

Today my pastor from Red Door is a great friend and he, Josh Lenon, met me at my oncology appointment and sat with me while I had the chemo. We got to talk about some of the Dr. Mary Neal story and some things that were different on a theological level than I had ever understood things. It is always good to talk things out with Josh. And, per my request, he downloaded a bunch of sermons by some of his favorite teachers like NT Wright, Ravi Zacharias, and Timothy Keller, just to name a few for me to listen to. I look forward to spending my free time enriching my spiritual growth. It will be welcomed and I can't wait to dive in! He also gave me a list of books that I might enjoy such as Ragamuffin Gospel, Counterfeit Gods, Prodigal God, Abba's Child, Surprised by Hope, How God Became King, and Simply Jesus. Thankfully, several of these are on audio through my library. So I have my work cut out for me. Finally, a time to feel well enough to take care of myself physically and spiritually.

Since I did in fact get chemo today, I need to respect the fact that my body is reeling chemically, so I will go lay down and rest, even if I don't necessarily feel it. Supposedly, I also got another steroid, so I may be buzzing around for a couple days too. I don't have any plans for friends to come by during the day this week at all, so if anyone wants to stop by for a visit, please text me and let me know.




Friday, August 19, 2016

Day 104, 105 Not much to report

I'll keep it short and sweet.

I'm still feeling great after my chemo! No symptoms at all! Very, very thankful!

Visiting some friends and friends visiting me has been my last few day's activities and it's been so pleasant and everyone is so thankful for how much easier this chemo drug has been on me, especially after seeing how awful it was with the other drugs.

I have had the opportunity to continue sharing the gift I received from Dr. Mary Neal and how it has changed me, helped me, and encouraged me. I see the continued ripple effect with many people who I now get to share it with.

I did wake up feeling a bit depressed this morning, but by the end of the day and after spending time with Michaelah S., God helped me through that and I was feeling more normal by the evening. It's possible that the chemo is killing off my estrogen and my hormones may be a little more fragile anyway, so I'm glad that undesirable feeling went away.

Off to watch John and the Binders run the Warrior Dash tomorrow!


Wednesday, August 17, 2016

Day 102, 103 Nothing Short Of A Miracle and Thankfulness On My Heart

Wait for it.....

Wait for it....

After my Monday chemotherapy, I wondered what this new drug would do to my body. Would I really feel the side effects less, as the good doctor promised? In all honesty, I was anxious. I hated the idea of walking into that place, getting poked into my port, and awaiting the sensation of the drug pulsing through my brain...like the previous 4 treatments. I even asked the oncologist, specifically, what I could expect. Would I lay on my sofa for days afterwards, listless, and feeling so aweful  that I just wanted to crawl into a hole?

And so far....NOTHING!  I feel pretty great! Yes, Thank You, Jesus is in order!

I did get drowsy during the treatment  on Monday because of the Benadryl infused Taxol, but after that I have had no real side effects. In fact, the steroid that is also in it gave me lots of energy for the first 2 days. So supposedly I am now pretty much feeling what I'll feel. I did need to take a nap for an hour this afternoon, but other than that, I have been awake, relatively energetic (enough to mow the grass this evening), alert, and appreciative.

Yesterday I even went to the YMCA and watched our Special Olympic athletes play floor hockey with John and the Binders. It was my first time back since I started chemo and it was lovely seeing so many smiling faces.

Today I watched Andy Stanley's YouTube videos on marriage and realized how blessed I am. He has a 3 part series called iMarriage and it's a great mini series for anyone who wants to get married, is married, or is thinking about getting married someday.

On a repetitive note, I can't believe how much Dr. Mary Neal's story has touched my life! Seriously, I find myself sharing how her testimony has literally shaped my own perspective on cancer, dying, trusting God, and living on purpose.

Monday, August 15, 2016

Days 99, 100, 101 Weekend With Cousins, Chemo 1 of 12 Started, and God's Blessings

I have had a happy weekend with cousins, Pam and Todd Parmenter! They came from Peoria, Illinois all the way here just to see me and it was good for my soul to see them and be with people I love so much! All we  really  did was relaxed and talked and ate for 2 days, plus we did go see a movie in Dayton at the Victoria Theatre. Sadly we did not get to kayak (my happy place) due to too much rain! Boo. I wanted to do as much as possible while I feel energetic enough, considering it's usually only been a few days now of feeling well. And I don't know what to expect with this new drug, plus it will be administered weekly, so I expect to be even more limited in my 'feel good' days.

This week I have woken up a lot during the night because my hot flashes have started again. Twice now, I got up at 3 a.m. and sat in my wilderness room and turned on my small evergreen tree with twinkle lights and read my Bible. I have read Titus a couple times and Ephesians and God just lights up Scripture as I read now-a-days! So thankful for that.

Today I had the first of 12 weekly chemo treatments with a new drug, Taxol. Thankfully, I did not feel it going in my brain like the others! This is a huge thanks to God! My friend, Doni Owens, brought me to my chemo appointment and bless her as she waited with me for 4.5 hours! Whew, this can take more time than I anticipated, but she was so gracious and had set her day aside for me. Again, this is proof of God's provision in my life. We talked about how God is changing my heart and growing me in all this. So much good has come from my hearing about Dr. Mary Neal and her miracle! (If you haven't watched her video I posted, please do as it might encourage you too. https://youtu.be/fHXW1erHMtg) God has used her life to shape my understanding of my cancer, help me trust in His plan for my life like never before, and give me an outlook on my eternal perspective in a fresh,  new way! Life changing! Then after chemo and lunch with Doni, I took her to John's wood shop and gave her a little tour, then took her on a Gator ride in our woods! Yes, I felt just that great!

And tonight, my sweet daughter, Sarah Jean called me just to see how my chemotherapy went today. Many others did too, mom and sisters and friends, but to have my daughter call ONLY to see if I was ok meant so much to me. When your children remember and care about those little details, it blesses a mother's heart deeply.

Then to top off my day, my dear friend, Holly B, just texted me and I have seen her faith in God grow ever since we met. I hear her heart and it trusts and believes in God's working in her life more and more. I believe that, though our time to work together was so very short at the dental office, it was God's working in her and my life as He blessed us with a friendship that goes way beyond work and she holds a very special place in my life and heart. I see that ripple effect of my cancer and am more thankful than ever. God is good and has a plan for all of us, and is closer than we sometimes realize.